Sickle Cell Disease Treatment Centers Act of 2026

This bill would require the Secretary of Health and Human Services to give grants to groups of health care providers and community nonprofits to set up Sickle Cell Disease Treatment Centers using a "hub-and-spoke" model. In this model, a hospital, clinic, or university health center (the hub) works with other providers (the spokes) and at least one community nonprofit to offer care, education, testing, and support services. The bill would also create a National Sickle Cell Disease Coordinating Center and direct the Centers for Disease Control and Prevention to collect data on sickle cell disease. It authorizes such sums as may be necessary starting in fiscal year 2027, with set percentages for treatment networks, nonprofits, the coordinating center, and data collection. The Secretary would report to Congress within 3 years and every 5 years after that.

Full text and official record on Congress.gov

Sponsors

• Chris Van Hollen Democrat sponsor
• 2 cosponsors