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Bill · 119th Congress · S 1838

DeOndra Dixon INCLUDE Project Act of 2026

Refreshed 2 h ago

Introduced 2025-05-21Topic: public health · health care

Summary

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This bill would require the Director of the National Institutes of Health (NIH) to run a program of research, training, and investigation on Down syndrome, called the INCLUDE Project. The program would study how Down syndrome affects development and health across a person's life, expand clinical trials that include people with Down syndrome, and research conditions that often occur with it, such as Alzheimer's disease and autoimmunity. NIH would have to coordinate this work across its institutes, prioritize research that does not duplicate existing work, and consult with stakeholders such as patient advocates. NIH would also report to certain congressional committees every two years on the research conducted.

Full text and official record on Congress.gov

Sponsors

Action history

DateChamberActionStatus effect
2026-08-10HouseHeld at the desk.
2026-08-10HouseReceived in the House.
2026-08-10SenateMessage on Senate action sent to the House.
2026-08-06SenatePassed Senate with an amendment by Voice Vote. (text of amendment in the nature of a substitute: CR S4495-4496)
2026-08-06Passed/agreed to in Senate: Passed Senate with an amendment by Voice Vote. (text of amendment in the nature of a substitute: CR S4495-4496)floor pass
2026-08-06SenateMeasure laid before Senate by unanimous consent. (consideration: CR S4495-4498)
2026-08-06SenateSenate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.report
2026-08-06Senate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.report
2025-05-21SenateRead twice and referred to the Committee on Health, Education, Labor, and Pensions.refer
2025-05-21Introduced in Senateintroduce
Source: GovInfo Bill Status (Library of Congress), fetched 2026-09-11. Provisions and opinion polling arrive in a later release.