ALS Better Care Act

This bill would add outpatient ALS-related services to Medicare coverage starting January 1, 2027, for people medically determined to have amyotrophic lateral sclerosis (ALS). Covered services include specialized physician or nurse practitioner care, occupational, speech, and physical therapy, dietary and respiratory support, registered nurse support, and coordination of medical equipment. Qualified providers would receive a single payment per visit, set at $800 in 2027, in addition to other Medicare payments, with later amounts adjusted for costs or based on Comptroller General recommendations. Patients would pay no cost sharing for these payments. The bill also requires the National Institutes of Health to report to Congress within 90 days on staffing and administration challenges in ALS clinical trials.

Full text and official record on Congress.gov

Sponsors

• Lisa Murkowski Republican sponsor
• 1 cosponsors