Gwenn’s Law

This bill would require the Department of Health and Human Services, through the National Institutes of Health, to run a public awareness campaign to increase the number of women taking part in NIH clinical trials, with outreach at hospitals, doctors' offices, and clinics and a priority on trials for rare diseases. It would also require a second campaign to increase women's participation in HHS programs on bleeding and clotting disorders, including hemophilia. Each campaign would be authorized $10 million per year for fiscal years 2027 through 2031. The bill would create a permanent federal task force on rare disease treatments and require HHS to publish an action plan within 180 days on rare diseases that disproportionately affect women.

Full text and official record on Congress.gov

Sponsors

• Josh Gottheimer Democrat sponsor
• 3 cosponsors